Information sheet on the processing of your personal data within the miGut Health IBD Community Campaign
As a participant in the miGut-Health IBD Community Campaign, this information sheet is provided to you by EURICE, the project's main partner responsible for communication activities. It conveys important information about EURICE’s privacy practices and your rights in relation to your personal information. We encourage you to carefully review the information below and to contact us should you have any questions.
1. WHO ARE WE?
The institution responsible for processing your personal data within the miGut-Health IBD Community Campaign according to the General Data Protection Regulation (GDPR) is:
EURICE GmbH
Heinrich-Hertz-Allee 1
66386 St. Ingbert
Germany
Represented by:
Jörg Scherer
Phone: +49 6894 388130
Email: contact-us@eurice.eu
A data protection officer has been appointed for our company:
Verimax GmbH
Warndtstr. 115
66127 Saarbrücken
Germany
Phone: +49 89 80065780
Email: dsb.eurice@verimax.de
2. SUBJECT MATTER
Editing and publication of short profiles on the official project’s website https://www.migut-health.eu/ as part of the “IBD Community” section presenting first hand experiences with inflammatory bowel diseases. Editing and publication of short profiles on the project’s official social media channels (X and LinkedIn) to inform about inflammatory bowel diseases.
3. PURPOSE
We process your personal data within the miGut Health IBD Community Campaign to raise awareness of inflammatory bowel diseases by communicating und disseminating first-hand experiences.
4. LEGAL BASIS OF DATA PROCESSING
The processing of your personal data is based on your consent according to Art. 6, para. 1, letter a) GDPR. You have the right to withdraw your consent at any time with effect for the future.
5. PERSONAL DATA
Your following personal data will be processed:
- Your IP address (when submitting your answers via our secure online questionnaire)
- Your first name
- Data concerning your health such as your statements, quotes including first hand experiences with inflammatory bowel diseases as entered by you in our questionnaire
- Your age (not mandatory)
- Photographs in which you are identifiable as an individual person (not mandatory)
6. RECIPIENTS OF PERSONAL DATA
- interested parties
- general public
- hosting provider for the project website
- social media channels
- project partners
- funding agencies
- policy makers
- EU auditors
7. TRANSFER TO A THIRD COUNTRY OR INTERNATIONAL ORGANIZATION
In order to reach the broader public and to promote the IBD Community Campaign, we use the services of X (X Corp, 1355 Market Street, Suite 900, San Francisco, CA 94103, USA) and LinkedIn (1000 W. Maude Avenue, Sunnyvale, CA 94085, USA), whose servers are situated outside the EU.
LinkedIn and X Corp. are certified under the EU-US-Data Privacy Framework. Therefore, the adequacy decision of the EU is in effect.
8. DURATION OF STORAGE
Periods for retention result from the applicable Horizon Europe provisions. In accordance thereto, the data must be retained for up to five years after receipt of the project’s final payment, according to Art. 20.1 GA and the miGut-Health Data Sheet, Point 6.
9. YOUR RIGHTS AS A DATA SUBJECT
You have the right to withdraw your given consent, the right of access, the right to rectification, the right to erasure (right to be forgotten), the right to restriction of processing, the right to data portability in accordance with Art. 20 GDPR as well as the right to object to the processing. Limitations in accordance with §§ 34 and 35 of the German BDSG apply to the right to access and the right to erasure.
In addition, individuals have a right to lodge complaints with us. In this case, please contact our data protection officer Verimax GmbH.
You also have the right to lodge a complaint with a supervisory authority. The competent supervisory authority for us is:
Unabhängiges Datenschutzzentrum Saarland
Die Landesbeauftragte für Datenschutz und Informationsfreiheit
Fritz-Dobisch-Straße 12
66111 Saarbrücken
Germany
Phone: +49 681 94781-0
Email: Poststelle@datenschutz.saarland.de